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Welp, things are still up in the air regarding my seizure.  My visit with the neurologist was interesting - she was nice enough but matter-of-fact when she said that my EEG showed abnormal brain activity and therefore I have seizure disorder, period, end of story.  She didn't seem to think that the medications I'd been taking had any bearing on the diagnosis, and said that I would need to be on anti-seizure medicine for the rest of my life.

Now, I'm not saying she's wrong - obviously if the test showed that my brain wiring was firing funny, then it was.  But she didn't think another EEG was in order, or that the other factors might be a consideration in thinking this was a one-off issue rather than a permanent diagnosis, which...I don't know.  I'm not opposed to taking the medicine if that's what I need to do in order to prevent another seizure from happening, but it feels like there might be some more testing to be done, considering all that's been going on with my body this year. 

Unfortunately, we live in Hooterville and there aren't a lot of neurologists around.  And yes we can go to a bigger city like Houston or Austin or Dallas but I don't just want to make an appointment with a random doctor; a recommendation would be nice, you know?  Luckily I happen to have an "in" in the medical community via Amanda, my PT/boss/friend.  She's asking for recommendations from some neurosurgeons that she works with; so far, nothing has panned out but there may be a new neurologist in town early next year so we'll see if that might be an option.

Meanwhile, I'm still dealing with a double whammy of post concussion syndrome, which can last at least six weeks, according to both of my doctors, plus the whole wonky brain wiring/seizure thing - oh, and getting used to the anti-seizure medicine, which can take at least four weeks.  So I guess that would be a triple whammy.  All I can tell you is that I can go from fine to all systems shutting down in a matter of minutes; lights and noises are overwhelming; and no one is getting a Christmas card this year. 

Also I need a nap.

Also seizure is a hard word for my fingers to type.

Also this post took me more than a day to write.

So yeah, I'm a mess and while I'm working on blog posts because I like to write and want to post fun stuff like pictures from our trip to Universal Studios, I'm having to take many breaks along the way and who knows when my next post will be up.  I'm not going anywhere, but I'm not exactly all here, either.



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